A Caregiver's Guide, A Handbook About End-of-life Care
A Caregiver's Guide is a joint initiative of the Order of Saint Lazarus in Canada and the Canadian Hospice Palliative Care Association.
A Caregiver's Guide was created to provide information for family caregivers to draw upon when preparing and caring for a loved one who has a progressive illness, especially at home. It was developed to complement resources and information provided to caregivers by healthcare professionals, including hospice palliative care teams.
A Caregiver's Guide's content builds on the knowledge, practice, insight and invaluable experiences of various seasoned hospice palliative care professionals from across Canada, incorporating their feedback and the lived experiences of supporting caregivers. This handbook provides specific information about planning ahead, preparing to be a caregiver, dealing with a progresive diagnosis, giving physical care, caring for physical problems, what to expect in the final days, and grieving.
To get the most from this guide, please feel free to read it at your own pace, consulting specific topics when you require guidance and support. Remember that if there is something you do not understand or if you need clarification, consult your healthcare team. If you intend to read the whole book at once, please understand that not all parts may, or will, apply to your particular situation. Each person is unique and may experience an illness and its progression in a different way.
Hospice Palliative Care organizations may order A Caregiver's Guide from the Canadian Hospice Palliative Care Association Marketplace in boxed quantities of 50 copies ( $150/box, not-for-profit and $250/box for-profit ). Individual copies can be ordered directly from the Order of Saint Lazarus from the Chancery's Office via email request with: